Browsing by Subject "symptom awareness"

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  • Moberg, Nora (Helsingfors universitet, 2016)
    Music interventions carried out by caregivers of persons with dementia (PWDs) have lately become the focus of music rehabilitation in dementia research. Dementia can be burdening for caregivers and it may disrupt the relationship between PWDs and caregivers. The aim of this thesis was to determine whether 1) awareness deficits frequently observed in PWDs manifest in rating discrepancies between PWDs and their caregivers when rating mood and quality of life of PWDs or if these differences are primarily explained by caregiver burden and 2) a caregiver-based music intervention can attenuate the rating discrepancies. In the current study, 89 PWD-caregiver dyads were randomly allocated in three groups: singing group, music listening group, and control group. Cognition, mood, and quality of life of the PWDs were assessed at baseline, immediately after the intervention, and 6 months after intervention. Discrepancy scores were calculated between the PWDs' and caregivers' ratings in Cornell-Brown Scale for Quality of Life in Dementia (CBS) and Quality of Life in Alzheimer's Disease (QOL-AD). Correlations of the discrepancy scores to intervention outcomes and baseline PWD and caregiver characteristics were examined. Differences between intervention groups in CBS and QOL-AD discrepancies were analyzed with ANOVA. QOL-AD discrepancy was associated with dementia severity at baseline. CBS discrepancies were consistently associated with caregiver burden, higher discrepancies corresponding to higher burden. The intervention groups did not show any differences in change in the discrepancy scores in mixed-model ANOVAs. Further research with more focused measures is needed to determine whether music interventions can alleviate awareness deficits and/or PWD-caregiver discrepancies and, regarding the latter, to reveal the exact route of the effect.