Assessment of Health-Related Quality of Life after TBI: Comparison of a Disease-Specific (QOLIBRI) with a Generic (SF-36) Instrument

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Steinbüchel , N V , Covic , A , Polinder , S , Kohlmann , T , Cepulyte , U , Poinstingl , H , Backhaus , J , Bakx , W , Bullinger , M , Christensen , A-L , Formisano , R , Gibbons , H , Höfer , S , Koskinen , S , Maas , A , Neugebauer , E , Powell , J , Sarajuuri , J , Sasse , N , Schmidt , S , Mühlan , H , Wild , K V , Zitnay , G & Truelle , J-L 2016 , ' Assessment of Health-Related Quality of Life after TBI: Comparison of a Disease-Specific (QOLIBRI) with a Generic (SF-36) Instrument ' Behavioural Neurology , vol. 2016 , Article ID 7928014 . DOI: 10.1155/2016/7928014

Title: Assessment of Health-Related Quality of Life after TBI: Comparison of a Disease-Specific (QOLIBRI) with a Generic (SF-36) Instrument
Author: Steinbüchel, Nicole von; Covic, Amra; Polinder, Suzanne; Kohlmann, Thomas; Cepulyte, Ugne; Poinstingl, Herbert; Backhaus, Joy; Bakx, Wilbert; Bullinger, Monika; Christensen, Anne-Lise; Formisano, Rita; Gibbons, Henning; Höfer, Stefan; Koskinen, Sanna; Maas, Andrew; Neugebauer, Edmund; Powell, Jane; Sarajuuri, Jaana; Sasse, Nadine; Schmidt, Silke; Mühlan, Holger; Wild, Klaus von; Zitnay, George; Truelle, Jean-Luc
Contributor: University of Helsinki, Department of Psychology and Logopedics
Date: 2016-02-03
Language: eng
Number of pages: 14
Belongs to series: Behavioural Neurology
ISSN: 0953-4180
URI: http://hdl.handle.net/10138/176377
Abstract: Psychosocial, emotional, and physical problems can emerge after traumatic brain njury (TBI), potentially impacting health-related quality of life (HRQoL). Until now, however, neither the discriminatory power of disease-specific (QOLIBRI) and generic (SF-36) HRQoL nor their correlates have been compared in detail. These aspects as well as some psychometric item characteristics were studied in a sample of 795 TBI survivors. The Shannon H耠 index absolute informativity, as an indicator of an instrument’s power to differentiate between individualswithin a specific group or health state,was investigated. Psychometric performance of the two instruments was predominantly good, generally higher, and more homogenous for the QOLIBRI than for the SF-36 subscales. Notably, the SF-36 “Role Physical,” “Role Emotional,” and “Social Functioning” subscales showed less satisfactory discriminatory power than all other dimensions or the sum scores of both instruments. The absolute informativity of disease-specific as well as generic HRQoL instruments concerning the different groups defined by different correlates differed significantly.When the focus is on how a certain subscale or sum score differentiates between individuals in one specific dimension/health state, the QOLIBRI can be recommended as the preferable instrument.
Subject: 515 Psychology
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