Healthcare decision-making in end stage renal disease-patient preferences and clinical correlates

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dc.contributor.author Jayanti, Anuradha
dc.contributor.author Neuvonen, Markus
dc.contributor.author Wearden, Alison
dc.contributor.author Morris, Julie
dc.contributor.author Foden, Philip
dc.contributor.author Brenchley, Paul
dc.contributor.author Mitra, Sandip
dc.contributor.author BASIC-HHD Study Grp
dc.date.accessioned 2017-08-17T05:23:02Z
dc.date.available 2017-08-17T05:23:02Z
dc.date.issued 2015-11-14
dc.identifier.citation Jayanti , A , Neuvonen , M , Wearden , A , Morris , J , Foden , P , Brenchley , P , Mitra , S & BASIC-HHD Study Grp 2015 , ' Healthcare decision-making in end stage renal disease-patient preferences and clinical correlates ' , BMC Nephrology , vol. 16 , 189 . https://doi.org/10.1186/s12882-015-0180-8
dc.identifier.other PURE: 80088687
dc.identifier.other PURE UUID: ab9e1226-1df9-4101-80e7-532d4269cd19
dc.identifier.other WOS: 000364804400001
dc.identifier.other Scopus: 84946866336
dc.identifier.uri http://hdl.handle.net/10138/212579
dc.description.abstract Background: Medical decision-making is critical to patient survival and well-being. Patients with end stage renal disease (ESRD) are faced with incrementally complex decision-making throughout their treatment journey. The extent to which patients seek involvement in the decision-making process and factors which influence these in ESRD need to be understood. Methods: 535 ESRD patients were enrolled into the cross-sectional study arm and 30 patients who started dialysis were prospectively evaluated. Patients were enrolled into 3 groups-'predialysis' (group A), 'in-centre' haemodialysis (HD) (group B) and self-care HD (93 % at home-group C) from across five tertiary UK renal centres. The Autonomy Preference Index (API) has been employed to study patient preferences for information-seeking (IS) and decision-making (DM). Demographic, psychosocial and neuropsychometric assessments are considered for analyses. Results: 458 complete responses were available. API items have high internal consistency in the study population (Cronbach's alpha > 0.70). Overall and across individual study groups, the scores for information-seeking and decision-making are significantly different indicating that although patients had a strong preference to be well informed, they were more neutral in their preference to participate in DM (p <0.05). In the age, education and study group adjusted multiple linear regression analysis, lower age, female gender, marital status; higher API IS scores and white ethnicity background were significant predictors of preference for decision-making. DM scores were subdivided into tertiles to identify variables associated with high (DM > 70: and low DM ( Conclusion: ESRD patients prefer to receive information, but this does not always imply active involvement in decision-making. By understanding modifiable and non-modifiable factors which affect patient preferences for involvement in healthcare decision-making, health professionals may acknowledge the need to accommodate individual patient preferences to the extent determined by the individual patient factors. en
dc.format.extent 17
dc.language.iso eng
dc.relation.ispartof BMC Nephrology
dc.rights cc_by
dc.rights.uri info:eu-repo/semantics/openAccess
dc.subject Haemodialysis
dc.subject Autonomy
dc.subject Decision-making
dc.subject Cognition
dc.subject HEMODIALYSIS-PATIENTS
dc.subject MODALITY SELECTION
dc.subject DIALYSIS PATIENTS
dc.subject KIDNEY-DISEASE
dc.subject INFORMATION
dc.subject DEPRESSION
dc.subject PARTICIPATION
dc.subject INVOLVEMENT
dc.subject AUTONOMY
dc.subject DESIRE
dc.subject 3142 Public health care science, environmental and occupational health
dc.title Healthcare decision-making in end stage renal disease-patient preferences and clinical correlates en
dc.type Article
dc.contributor.organization Department of Political and Economic Studies (2010-2017)
dc.description.reviewstatus Peer reviewed
dc.relation.doi https://doi.org/10.1186/s12882-015-0180-8
dc.relation.issn 1471-2369
dc.rights.accesslevel openAccess
dc.type.version publishedVersion

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