Marked deterioration in the quality of life of patients with idiopathic pulmonary fibrosis during the last two years of life

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Rajala , K , Lehto , J T , Sutinen , E , Kautiainen , H , Myllärniemi , M & Saarto , T 2018 , ' Marked deterioration in the quality of life of patients with idiopathic pulmonary fibrosis during the last two years of life ' , BMC Pulmonary Medicine , vol. 18 , 172 . https://doi.org/10.1186/s12890-018-0738-x

Title: Marked deterioration in the quality of life of patients with idiopathic pulmonary fibrosis during the last two years of life
Author: Rajala, K.; Lehto, J. T.; Sutinen, E.; Kautiainen, H.; Myllärniemi, M.; Saarto, T.
Other contributor: University of Helsinki, Department of Medicine
University of Helsinki, Kuopio University Hospital (KYS)
University of Helsinki, Department of Medicine
University of Helsinki, Department of Oncology






Date: 2018-11-20
Language: eng
Number of pages: 9
Belongs to series: BMC Pulmonary Medicine
ISSN: 1471-2466
DOI: https://doi.org/10.1186/s12890-018-0738-x
URI: http://hdl.handle.net/10138/268055
Abstract: BackgroundIdiopathic pulmonary fibrosis (IPF) is a chronic disease with a high symptom burden and poor survival that influences patients' health-related quality of life (HRQOL). We aimed to evaluate IPF patients' symptoms and HRQOL in a well-documented clinical cohort during their last two years of life.MethodsIn April 2015, we sent the Modified Medical Research Council Dyspnea Scale (MMRC), the modified Edmonton Symptom Assessment Scale (ESAS) and a self-rating HRQOL questionnaire (RAND-36) to 300 IPF patients, of which 247 (82%) responded. Thereafter, follow-up questionnaires were sent every six months for two years.ResultsNinety-two patients died by August 2017. Among these patients, HRQOL was found to be considerably low already two years before death. The most prominent declines in HRQOL occurred in physical function, vitality, emotional role and social functioning (p
Subject: Idiopathic pulmonary fibrosis
Palliative care
Health related quality of life
Symptoms
RANDOMIZED CONTROLLED-TRIAL
LUNG-CANCER PATIENTS
INTEGRATED PALLIATIVE CARE
CLINICAL-PRACTICE
FUNCTIONAL STATUS
IPF REGISTRY
DISEASE
MANAGEMENT
DYSPNEA
COMORBIDITIES
3121 General medicine, internal medicine and other clinical medicine
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