Rationale for a Swedish cohort consortium

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http://hdl.handle.net/10138/300897

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Sundström , J , Björkelund , C , Giedraitis , V , Hansson , P-O , Högman , M , Janson , C , Koupil , I , Kristenson , M , Lagerros , Y T , Leppert , J , Lind , L , Lissner , L , Johansson , I , Ludvigsson , J F , Nilsson , P M , Olsson , H , Pedersen , N L , Rosenblad , A , Rosengren , A , Sandin , S , Snäckerström , T , Stenbeck , M , Söderberg , S , Weiderpass , E , Wanhainen , E , Wennberg , P , Fortier , I , Heller , S , Storgärds , M & Svennblad , B 2019 , ' Rationale for a Swedish cohort consortium ' , Upsala Journal of Medical Sciences , vol. 124 , no. 1 , pp. 21-28 . https://doi.org/10.1080/03009734.2018.1556754

Title: Rationale for a Swedish cohort consortium
Author: Sundström, Johan; Björkelund, Cecilia; Giedraitis, Vilmantas; Hansson, Per-Olof; Högman, Marieann; Janson, Christer; Koupil, Ilona; Kristenson, Margareta; Lagerros, Ylva Trolle; Leppert, Jerzy; Lind, Lars; Lissner, Lauren; Johansson, Ingegerd; Ludvigsson, Jonas F.; Nilsson, Peter M.; Olsson, Håkan; Pedersen, Nancy L.; Rosenblad, Andreas; Rosengren, Annika; Sandin, Sven; Snäckerström, Tomas; Stenbeck, Magnus; Söderberg, Stefan; Weiderpass, Elisabete; Wanhainen, Ers; Wennberg, Patrik; Fortier, Isabel; Heller, Susanne; Storgärds, Maria; Svennblad, Bodil
Contributor: University of Helsinki, Department of Medical and Clinical Genetics
Date: 2019-01-02
Language: eng
Number of pages: 8
Belongs to series: Upsala Journal of Medical Sciences
ISSN: 0300-9734
URI: http://hdl.handle.net/10138/300897
Abstract: We herein outline the rationale for a Swedish cohort consortium, aiming to facilitate greater use of Swedish cohorts for world-class research. Coordination of all Swedish prospective population-based cohorts in a common infrastructure would enable more precise research findings and facilitate research on rare exposures and outcomes, leading to better utilization of study participants' data, better return of funders' investments, and higher benefit to patients and populations. We motivate the proposed infrastructure partly by lessons learned from a pilot study encompassing data from 21 cohorts. We envisage a standing Swedish cohort consortium that would drive development of epidemiological research methods and strengthen the Swedish as well as international epidemiological competence, community, and competitiveness.
Subject: Common infrastructure
epidemiological research
pilot study
rare outcomes
Swedish cohort consortium
HARMONIZATION
REGISTER
CANCER
3121 General medicine, internal medicine and other clinical medicine
3122 Cancers
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