Health, functionality, and social support in families with a child with a neurodevelopmental disorder - a pilot study

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http://hdl.handle.net/10138/303580

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Cavonius-Rintahaka , D , Aho , A L , Voutilainen , A , Billstedt , E & Gillberg , C 2019 , ' Health, functionality, and social support in families with a child with a neurodevelopmental disorder - a pilot study ' , Neuropsychiatric Disease and Treatment , vol. 15 , pp. 1151-1161 . https://doi.org/10.2147/NDT.S195722

Title: Health, functionality, and social support in families with a child with a neurodevelopmental disorder - a pilot study
Author: Cavonius-Rintahaka, Diana; Aho, Anna Liisa; Voutilainen, Arja; Billstedt, Eva; Gillberg, Christopher
Contributor: University of Helsinki, HUS Children and Adolescents
University of Helsinki, Children's Hospital
Date: 2019
Language: eng
Number of pages: 11
Belongs to series: Neuropsychiatric Disease and Treatment
ISSN: 1176-6328
URI: http://hdl.handle.net/10138/303580
Abstract: Introduction: Several studies have reported that having a child with a neurodevelopmental disorder (NDD) increases parental stress and that parental psychosocial functioning influences child's development and behavior. It is unclear how parents of children with NDD experience family functionality, family health and receive support and if there are differences between experiences of mothers and fathers. Methods: Families with children referred to a neurocognitive unit were invited to the study. A modified version of the FAmily Functionality, HEalth, and Social support (FAFHES) questionnaire was used. Open-ended questions were also included. Results: Parents rated their social support lower than their family functionality and family health. Family functionality correlated positively with family health. No significant differences were found between mothers' and fathers' experiences. A three-months test-retest using the FAFHES showed no significant change in ratings of family functionality, family health, and social support. Conclusions: Family functionality was connected to family health in families with a child with NDD. Mothers and fathers experienced their family health, family functionality, and received social support in similar ways.
Subject: parents
family health
family functionality
social support
neurodevelopmental disorders
ATTENTION-DEFICIT/HYPERACTIVITY DISORDER
PARENTS EXPERIENCES
YOUNG-CHILDREN
MENTAL-HEALTH
STRESS
SYMPTOMS
MOTHERS
AUTISM
ASSOCIATIONS
ADOLESCENTS
3112 Neurosciences
3124 Neurology and psychiatry
316 Nursing
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