Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research.

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http://hdl.handle.net/10138/303961

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Aitken , M , Tully , M P , Porteous , C , Denegri , S , Cunningham-Burley , S , Banner , N , Black , C , Burgess , M , Cross , L , van Delden , J H , Ford , E , Fox , S , Fitzpatrick , N K , Gallacher , K , Goddard , C , Hassan , L , Jamieson , R , Jones , K H , Kaarakainen , M S , Lugg-Widger , F , McGrail , K , McKenzie , A , Moran , R , Murtagh , M J , Oswald , M , Paprica , A , Perrin , N , Richards , E , Rouse , J , Webb , J & Willison , D 2019 , ' Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research. ' , International Journal of Population Data Science , vol. 4 , no. 1 . https://doi.org/10.23889/ijpds.v4i1.586

Titel: Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research.
Författare: Aitken, Mhairi; Tully, Mary Patricia; Porteous, Carol; Denegri, Simon; Cunningham-Burley, Sarah; Banner, Natalie; Black, Corri; Burgess, Michael; Cross, Lynsey; van Delden, J.H.; Ford, Elizabeth; Fox, Sarah; Fitzpatrick, N.K.; Gallacher, Kay; Goddard, Catherine; Hassan, Lamiece; Jamieson, Ron; Jones, Kerina H.; Kaarakainen, Minna Susanna; Lugg-Widger, Fiona; McGrail, Kim; McKenzie, Anne; Moran, Rosalyn; Murtagh, Madeleine J.; Oswald, Malcom; Paprica, Alison; Perrin, Nicola; Richards, Emma; Rouse, John; Webb, Joanne; Willison, Donald
Medarbetare: University of Helsinki, Centre for Consumer Society Research
Datum: 2019-02-14
Språk: eng
Sidantal: 6
Tillhör serie: International Journal of Population Data Science
ISSN: 2399-4908
Permanenta länken (URI): http://hdl.handle.net/10138/303961
Abstrakt: This consensus statement reflects the deliberations of an international group of stakeholders with a range of expertise in public involvement and engagement (PI&E) relating to data-intensive health research. It sets out eight key principles to establish a secure role for PI&E in and with the research community internationally and ensure best practice in its execution. Our aim is to promote culture change and societal benefits through ensuring a socially responsible trajectory for innovations in this field.
Subject: 512 Business and Management
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