Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research.

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dc.contributor University of Helsinki, Centre for Consumer Society Research en
dc.contributor.author Aitken, Mhairi
dc.contributor.author Tully, Mary Patricia
dc.contributor.author Porteous, Carol
dc.contributor.author Denegri, Simon
dc.contributor.author Cunningham-Burley, Sarah
dc.contributor.author Banner, Natalie
dc.contributor.author Black, Corri
dc.contributor.author Burgess, Michael
dc.contributor.author Cross, Lynsey
dc.contributor.author van Delden, J.H.
dc.contributor.author Ford, Elizabeth
dc.contributor.author Fox, Sarah
dc.contributor.author Fitzpatrick, N.K.
dc.contributor.author Gallacher, Kay
dc.contributor.author Goddard, Catherine
dc.contributor.author Hassan, Lamiece
dc.contributor.author Jamieson, Ron
dc.contributor.author Jones, Kerina H.
dc.contributor.author Kaarakainen, Minna Susanna
dc.contributor.author Lugg-Widger, Fiona
dc.contributor.author McGrail, Kim
dc.contributor.author McKenzie, Anne
dc.contributor.author Moran, Rosalyn
dc.contributor.author Murtagh, Madeleine J.
dc.contributor.author Oswald, Malcom
dc.contributor.author Paprica, Alison
dc.contributor.author Perrin, Nicola
dc.contributor.author Richards, Emma
dc.contributor.author Rouse, John
dc.contributor.author Webb, Joanne
dc.contributor.author Willison, Donald
dc.date.accessioned 2019-07-19T13:25:01Z
dc.date.available 2019-07-19T13:25:01Z
dc.date.issued 2019-02-14
dc.identifier.citation Aitken , M , Tully , M P , Porteous , C , Denegri , S , Cunningham-Burley , S , Banner , N , Black , C , Burgess , M , Cross , L , van Delden , J H , Ford , E , Fox , S , Fitzpatrick , N K , Gallacher , K , Goddard , C , Hassan , L , Jamieson , R , Jones , K H , Kaarakainen , M S , Lugg-Widger , F , McGrail , K , McKenzie , A , Moran , R , Murtagh , M J , Oswald , M , Paprica , A , Perrin , N , Richards , E , Rouse , J , Webb , J & Willison , D 2019 , ' Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research. ' , International Journal of Population Data Science , vol. 4 , no. 1 . https://doi.org/10.23889/ijpds.v4i1.586 en
dc.identifier.issn 2399-4908
dc.identifier.other PURE: 121461143
dc.identifier.other PURE UUID: 2bc182f8-a796-4efd-b332-b9a1382fe3a4
dc.identifier.other ORCID: /0000-0003-0614-5318/work/59679983
dc.identifier.uri http://hdl.handle.net/10138/303961
dc.description.abstract This consensus statement reflects the deliberations of an international group of stakeholders with a range of expertise in public involvement and engagement (PI&E) relating to data-intensive health research. It sets out eight key principles to establish a secure role for PI&E in and with the research community internationally and ensure best practice in its execution. Our aim is to promote culture change and societal benefits through ensuring a socially responsible trajectory for innovations in this field. en
dc.format.extent 6
dc.language.iso eng
dc.relation.ispartof International Journal of Population Data Science
dc.relation.uri https://ijpds.org/article/view/586/1032
dc.rights en
dc.subject 512 Business and Management en
dc.title Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research. en
dc.type Article
dc.description.version Peer reviewed
dc.identifier.doi https://doi.org/10.23889/ijpds.v4i1.586
dc.type.uri info:eu-repo/semantics/other
dc.type.uri info:eu-repo/semantics/publishedVersion
dc.contributor.pbl

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