Suomalaisten geenitietämys ja suhtautuminen perimästä saatavaan terveystietoon

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Haukkala , A , Vornanen , M , Halmesvaara , O , Konttinen , H , Perola , M , Kääriäinen , H , Jallinoja , P & Aktan-Collan , K 2018 , ' Suomalaisten geenitietämys ja suhtautuminen perimästä saatavaan terveystietoon ' , Duodecim , Vuosikerta. 134 , Nro 11 , Sivut 1187-1195 . < >

Title: Suomalaisten geenitietämys ja suhtautuminen perimästä saatavaan terveystietoon
Alternative title: Genetic knowledge and attitudes towards health-related genetic information among Finns
Author: Haukkala, Ari; Vornanen, Marleena; Halmesvaara, Otto; Konttinen, Hanna; Perola, Markus; Kääriäinen, Helena; Jallinoja, Piia; Aktan-Collan, Katja
Contributor organization: Academic Disciplines of the Faculty of Social Sciences
Center for Population, Health and Society
Research group of Ari Haukkala
Valtiotieteellinen tiedekunta
Elintarvike- ja ravitsemustieteiden osasto
Date: 2018-06-01
Language: fin
Number of pages: 9
Belongs to series: Duodecim
ISSN: 0012-7183
Abstract: BACKGROUND. In this study, we examined the genetic knowledge among Finns, their attitudes towards genetic testing, and which types of health-related genetic information they are interested in. METHODS. We invited a random sample of 4000 18 to 64-year-old citizens to participate. The online survey received 792 responses (response rate: 19.8%) in June-September 2017. The survey explored the level of genetic knowledge and the attitudes and experience concerning genetic testing. The survey included a video that provided four examples of health-related genetic information. RESULTS.The majority of participants considered that they had too little knowledge of genetic tests. Younger and more educated participants and those working in healthcare had a better knowledge of genetics than the others. Attitudes towards genetic testing were positive and the respondents felt that they should have autonomy in decisions related to genetic tests. The respondents wished to receive risk information on actionable hereditary diseases, multifactorial diseases, and carrier status. In contrast, they were more negative about risk information on non-actionable hereditary diseases. CONCLUSIONS. The majority of Finns perceive health-related genetic information as useful. They are interested in their personal genetic risk information.
Subject: 3111 Biolääketieteet
Peer reviewed: Yes
Usage restriction: openAccess
Self-archived version: publishedVersion

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