Health-related quality of life and neurodevelopmental outcomes among children with intestinal failure

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http://hdl.handle.net/10138/306638

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Hukkinen , M , Merras-Salmio , L & Pakarinen , M P 2018 , ' Health-related quality of life and neurodevelopmental outcomes among children with intestinal failure ' , Seminars in pediatric surgery. , vol. 27 , no. 4 , pp. 273-279 . https://doi.org/10.1053/j.sempedsurg.2018.07.004

Title: Health-related quality of life and neurodevelopmental outcomes among children with intestinal failure
Author: Hukkinen, Maria; Merras-Salmio, Laura; Pakarinen, Mikko P.
Contributor: University of Helsinki, Children's Hospital
University of Helsinki, Children's Hospital
University of Helsinki, Children's Hospital
Date: 2018-08
Language: eng
Number of pages: 7
Belongs to series: Seminars in pediatric surgery.
ISSN: 1055-8586
URI: http://hdl.handle.net/10138/306638
Abstract: Treatment results of pediatric intestinal failure have improved markedly during the last decades. With improved survival the attention is turning to other essential outcomes including quality of life and neurodevelopment. So far, relatively few studies with limited number of patients and variable methodology have addressed these issues. Based on these studies using generic health related quality of life tools, children with intestinal failure demonstrate decreased physical health, while PN-dependence is also associated with compromised emotional functioning. Impairments of social functioning are frequently observed among older children and parents. Few recent studies on neurodevelopment imply significant impairments in motor and mental skills among children with intestinal failure despite small sample sizes and limited follow-up times. Development of a disease-specific survey designed for the pediatric intestinal failure population could better reveal the health issues with greatest impact on quality of life. Robust studies with appropriate methodology on neurodevelopment in pediatric intestinal failure with extended follow-up times are urgently needed. Quality of life and neurodevelopment requires greater attention from medical professionals managing children with intestinal failure. (C) 2018 Elsevier Inc. All rights reserved.
Subject: Cognitive functioning
Psychomotor functioning
Short bowel syndrome
SHORT-BOWEL SYNDROME
HOME PARENTERAL-NUTRITION
PRETERM INFANTS
NECROTIZING ENTEROCOLITIS
LIVER-DISEASE
SCHOOL-AGE
TERM
GASTROSCHISIS
DEFICIENCIES
SATISFACTION
3123 Gynaecology and paediatrics
3126 Surgery, anesthesiology, intensive care, radiology
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