Financial Challenges of Cancer for Adolescents and Young Adults and Their Parent Caregivers

Show full item record



Permalink

http://hdl.handle.net/10138/319861

Citation

McNeil , R J , McCarthy , M , Dunt , D , Thompson , K , Kosola , S , Orme , L , Drew , S & Sawyer , S 2019 , ' Financial Challenges of Cancer for Adolescents and Young Adults and Their Parent Caregivers ' , Social Work Research , vol. 43 , no. 1 , pp. 16-30 . https://doi.org/10.1093/swr/svy027

Title: Financial Challenges of Cancer for Adolescents and Young Adults and Their Parent Caregivers
Author: McNeil, Robyn J.; McCarthy, Maria; Dunt, David; Thompson, Kate; Kosola, Silja; Orme, Lisa; Drew, Sarah; Sawyer, Susan
Contributor: University of Helsinki, Clinicum
Date: 2019-03
Language: eng
Number of pages: 14
Belongs to series: Social Work Research
ISSN: 1070-5309
URI: http://hdl.handle.net/10138/319861
Abstract: This study examined the financial impact of cancer and the use of income support in adolescents and young adults (AYAs) with cancer and their parent caregivers. As part of a national Australian study exploring the psychosocial impacts of cancer, 196 AYAs ages 15 to 25 years, six to 24 months from diagnosis, and 204 parent caregivers from 18 cancer sites were surveyed. Logistic regression and chi-square analyses were conducted to assess the influence of clinical and sociodemographic variables on financial status. Qualitative responses were coded, and key themes were identified using thematic analysis. The findings indicate that more than half of AYAs and parents reported financial issues as a consequence of AYA cancer. Financial issues resulted from direct medical costs, associated costs from treatment, and indirect costs from loss of income. AYAs and parents reported that it was important for them to receive income support, both during and after cancer treatment. However, large proportions of those who reported needing income support had difficulty accessing it. AYAs and their families are substantially financially disadvantaged by cancer, many for a prolonged time. Patient- and family-centered assessments and interventions are required to reduce the financial burden of AYA cancer.
Subject: adolescents and young adults
cancer
financial burden
income support
psychosocial impacts
QUALITY-OF-LIFE
CHILDHOOD-CANCER
CARE
BURDEN
HEALTH
IMPACT
COSTS
PERSPECTIVES
FAMILIES
FUTURE
5145 Social work
Rights:


Files in this item

Total number of downloads: Loading...

Files Size Format View
Financial_paper.pdf 1.188Mb PDF View/Open

This item appears in the following Collection(s)

Show full item record