Attitudes towards genetic testing and information : does parenthood shape the views?

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Saastamoinen , A , Hyttinen , V , Kortelainen , M , Aaltio , J , Auranen , M , Ylikallio , E , Lönnqvist , T , Sainio , M , Suomalainen , A , Tyynismaa , H & Isohanni , P 2020 , ' Attitudes towards genetic testing and information : does parenthood shape the views? ' , Journal of Community Genetics , vol. 11 , no. 4 , pp. 461-473 .

Title: Attitudes towards genetic testing and information : does parenthood shape the views?
Author: Saastamoinen, Antti; Hyttinen, Virva; Kortelainen, Mika; Aaltio, Juho; Auranen, Mari; Ylikallio, Emil; Lönnqvist, Tuula; Sainio, Markus; Suomalainen, Anu; Tyynismaa, Henna; Isohanni, Pirjo
Contributor organization: STEMM - Stem Cells and Metabolism Research Program
Research Programs Unit
University of Helsinki
HUS Neurocenter
Neurologian yksikkö
Helsinki University Hospital Area
Department of Neurosciences
HUS Children and Adolescents
Children's Hospital
Lastenneurologian yksikkö
Centre of Excellence in Stem Cell Metabolism
Anu Wartiovaara / Principal Investigator
Neuroscience Center
Department of Medical and Clinical Genetics
Henna Tyynismaa / Principal Investigator
Date: 2020-10
Language: eng
Number of pages: 13
Belongs to series: Journal of Community Genetics
ISSN: 1868-310X
Abstract: This study examines how parents of pediatric patients might differ in their views and attitudes towards genetic technology and information when compared to adult patients. There is surprisingly little evidence on how parents compare to other parts of population in their attitudes. Previous empirical studies often relate health-related preferences and attitudes to factors such as age, education, and income instead of parental status, thus evading comparison of parents to others as health-related decision makers. Findings related to the parental status can be useful when implementing genetic technology in clinical practice. We conducted a survey of views on genetic technology and information for groups of adult neurology patients (n = 68) and parents of pediatric neurology patients (n = 31) to shed some light on this issue. In addition to our own survey instrument, we conducted other surveys to gain insight on psychosocial factors that might affect these attitudes. The results suggest that parents are more concerned about their children's genetic risk factors when compared to the attitudes of adult patients about their own risk. For both groups, negative emotional state was associated with more concerns towards genetic information. Our study provides insights on how parental views might affect the acceptance of genetic technology and information.
Subject: Genetic information
Parental attitudes
1184 Genetics, developmental biology, physiology
Peer reviewed: Yes
Rights: cc_by
Usage restriction: openAccess
Self-archived version: publishedVersion

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