The EU Child Cohort Network’s core data: establishing a set of findable, accessible, interoperable and re-usable (FAIR) variables

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dc.contributor.author LifeCycle Project Group
dc.contributor.author Pinot de Moira, Angela
dc.contributor.author Haakma, Sido
dc.contributor.author Strandberg-Larsen, Katrine
dc.contributor.author Eriksson, Johan G.
dc.contributor.author Mikkola, Tuija M.
dc.contributor.author Nybo Andersen, Anne-Marie
dc.date.accessioned 2021-07-15T13:06:01Z
dc.date.available 2021-07-15T13:06:01Z
dc.date.issued 2021-05
dc.identifier.citation LifeCycle Project Group , Pinot de Moira , A , Haakma , S , Strandberg-Larsen , K , Eriksson , J G , Mikkola , T M & Nybo Andersen , A-M 2021 , ' The EU Child Cohort Network’s core data: establishing a set of findable, accessible, interoperable and re-usable (FAIR) variables ' , European Journal of Epidemiology , vol. 36 , no. 5 , pp. 565-580 . https://doi.org/10.1007/s10654-021-00733-9
dc.identifier.other PURE: 166374877
dc.identifier.other PURE UUID: 74818f66-7362-4214-879b-63907121378b
dc.identifier.other RIS: urn:2DFDE8D4B1387403E21402EBD0473AC6
dc.identifier.other RIS: Pinot de Moira2021
dc.identifier.other WOS: 000642069500002
dc.identifier.uri http://hdl.handle.net/10138/332440
dc.description.abstract The Horizon2020 LifeCycle Project is a cross-cohort collaboration which brings together data from multiple birth cohorts from across Europe and Australia to facilitate studies on the influence of early-life exposures on later health outcomes. A major product of this collaboration has been the establishment of a FAIR (findable, accessible, interoperable and reusable) data resource known as the EU Child Cohort Network. Here we focus on the EU Child Cohort Network’s core variables. These are a set of basic variables, derivable by the majority of participating cohorts and frequently used as covariates or exposures in lifecourse research. First, we describe the process by which the list of core variables was established. Second, we explain the protocol according to which these variables were harmonised in order to make them interoperable. Third, we describe the catalogue developed to ensure that the network’s data are findable and reusable. Finally, we describe the core data, including the proportion of variables harmonised by each cohort and the number of children for whom harmonised core data are available. EU Child Cohort Network data will be analysed using a federated analysis platform, removing the need to physically transfer data and thus making the data more accessible to researchers. The network will add value to participating cohorts by increasing statistical power and exposure heterogeneity, as well as facilitating cross-cohort comparisons, cross-validation and replication. Our aim is to motivate other cohorts to join the network and encourage the use of the EU Child Cohort Network by the wider research community. en
dc.format.extent 16
dc.language.iso eng
dc.relation.ispartof European Journal of Epidemiology
dc.rights cc_by
dc.rights.uri info:eu-repo/semantics/openAccess
dc.subject 3142 Public health care science, environmental and occupational health
dc.subject Birth cohort
dc.subject Cross-cohort collaboration
dc.subject Lifecourse epidemiology
dc.subject Data harmonisation
dc.subject FAIR (findable
dc.subject accessible
dc.subject interoperable and reusable) principles
dc.subject BIRTH-WEIGHT
dc.subject DNA METHYLATION
dc.subject DATA HARMONIZATION
dc.subject NORWEGIAN MOTHER
dc.subject AIR-POLLUTION
dc.subject PRETERM BIRTH
dc.subject PREGNANCY
dc.subject PROFILE
dc.subject HEALTH
dc.subject GROWTH
dc.title The EU Child Cohort Network’s core data: establishing a set of findable, accessible, interoperable and re-usable (FAIR) variables en
dc.type Article
dc.contributor.organization Clinicum
dc.contributor.organization Research Programs Unit
dc.contributor.organization Johan Eriksson / Principal Investigator
dc.contributor.organization Department of General Practice and Primary Health Care
dc.contributor.organization Faculty of Medicine
dc.contributor.organization University of Helsinki
dc.description.reviewstatus Peer reviewed
dc.relation.doi https://doi.org/10.1007/s10654-021-00733-9
dc.relation.issn 1573-7284
dc.rights.accesslevel openAccess
dc.type.version publishedVersion

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