Representing the 'Voice' of Patients : How Third Sector Organisations Conceptualise and Communicate Experiential Knowledge in Health Service Development

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Jones , M , Jallinoja , P & Pietila , I 2021 , ' Representing the 'Voice' of Patients : How Third Sector Organisations Conceptualise and Communicate Experiential Knowledge in Health Service Development ' , Voluntas , vol. 32 , no. 3 , pp. 561–572 . https://doi.org/10.1007/s11266-020-00296-5

Titel: Representing the 'Voice' of Patients : How Third Sector Organisations Conceptualise and Communicate Experiential Knowledge in Health Service Development
Författare: Jones, Marjaana; Jallinoja, Piia; Pietila, Ilkka
Upphovmannens organisation: Helsinki Inequality Initiative (INEQ)
Social Policy
Centre of Excellence in Research on Ageing and Care
Datum: 2021-06
Språk: eng
Sidantal: 12
Tillhör serie: Voluntas
ISSN: 0957-8765
DOI: https://doi.org/10.1007/s11266-020-00296-5
Permanenta länken (URI): http://hdl.handle.net/10138/332886
Abstrakt: The growing prominence of patient and public involvement in health services has led to the increased use of experiential knowledge alongside medical and professional knowledge bases. Third sector organisations, which position themselves as representatives of collective patient groups, have established channels to communicate experiential knowledge to health services. However, organisations may interpret and communicate experiential knowledge in different ways, and due to a lack of inherent authority, it can be dismissed by health professionals. Thus, drawing on individual interviews with organisation representatives, we explore the definitions and uses of as well as the 'filters' placed upon experiential knowledge. The analysis suggests that whilst experiential knowledge is seen as all-encompassing, practical and transformative, the organisations need to engage in actions that can tame experiential knowledge and try to balance between ensuring that the critical and authentic elements of experiential knowledge were not lost whilst retaining a position as collaborators in health care development processes.
Subject: 5142 Social policy
Experiential knowledge
Health care
Finland
Patient and public involvement
Referentgranskad: Ja
Licens: cc_by
Användningsbegränsning: openAccess
Parallelpublicerad version: publishedVersion


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