Representing the 'Voice' of Patients : How Third Sector Organisations Conceptualise and Communicate Experiential Knowledge in Health Service Development

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dc.contributor.author Jones, Marjaana
dc.contributor.author Jallinoja, Piia
dc.contributor.author Pietila, Ilkka
dc.date.accessioned 2021-08-06T11:23:01Z
dc.date.available 2021-08-06T11:23:01Z
dc.date.issued 2021-06
dc.identifier.citation Jones , M , Jallinoja , P & Pietila , I 2021 , ' Representing the 'Voice' of Patients : How Third Sector Organisations Conceptualise and Communicate Experiential Knowledge in Health Service Development ' , Voluntas , vol. 32 , no. 3 , pp. 561–572 . https://doi.org/10.1007/s11266-020-00296-5
dc.identifier.other PURE: 157650494
dc.identifier.other PURE UUID: 0807a3ad-ce1a-44dd-b7db-31906f09a04e
dc.identifier.other WOS: 000595417000001
dc.identifier.other Scopus: 85097146539
dc.identifier.other ORCID: /0000-0002-3830-3619/work/98163232
dc.identifier.uri http://hdl.handle.net/10138/332886
dc.description.abstract The growing prominence of patient and public involvement in health services has led to the increased use of experiential knowledge alongside medical and professional knowledge bases. Third sector organisations, which position themselves as representatives of collective patient groups, have established channels to communicate experiential knowledge to health services. However, organisations may interpret and communicate experiential knowledge in different ways, and due to a lack of inherent authority, it can be dismissed by health professionals. Thus, drawing on individual interviews with organisation representatives, we explore the definitions and uses of as well as the 'filters' placed upon experiential knowledge. The analysis suggests that whilst experiential knowledge is seen as all-encompassing, practical and transformative, the organisations need to engage in actions that can tame experiential knowledge and try to balance between ensuring that the critical and authentic elements of experiential knowledge were not lost whilst retaining a position as collaborators in health care development processes. en
dc.format.extent 12
dc.language.iso eng
dc.relation.ispartof Voluntas
dc.rights cc_by
dc.rights.uri info:eu-repo/semantics/openAccess
dc.subject 5142 Social policy
dc.subject Experiential knowledge
dc.subject Health care
dc.subject Finland
dc.subject Patient and public involvement
dc.title Representing the 'Voice' of Patients : How Third Sector Organisations Conceptualise and Communicate Experiential Knowledge in Health Service Development en
dc.type Article
dc.contributor.organization Helsinki Inequality Initiative (INEQ)
dc.contributor.organization Social Policy
dc.contributor.organization Centre of Excellence in Research on Ageing and Care
dc.description.reviewstatus Peer reviewed
dc.relation.doi https://doi.org/10.1007/s11266-020-00296-5
dc.relation.issn 0957-8765
dc.rights.accesslevel openAccess
dc.type.version publishedVersion

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