Autistic Adult Health and Professional Perceptions of It: Evidence From the ASDEU Project

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Micai , M , Ciaramella , A , Salvitti , T , Fulceri , F , Fatta , LM , Poustka , L , Diehm , R , Iskrov , G , Stefanov , R , Guillon , Q , Roge , B , Staines , A , Sweeney , MR , Boilson , AM , Leosdottir , T , Saemundsen , E , Moilanen , I , Ebeling , H , Yliherva , A , Gissler , M , Parviainen , T , Tani , P , Kawa , R , Vicente , A , Rasga , C , Budisteanu , M , Dale , I , Povey , C , Flores , N , Jenaro , C , Monroy , ML , Primo , PG , Charman , T , Cramer , S , Warberg , CK , Canal-Bedia , R , Posada , M , Scattoni , ML & Schendel , D 2021 , ' Autistic Adult Health and Professional Perceptions of It: Evidence From the ASDEU Project ' , Frontiers in psychiatry , vol. 12 , 614102 . https://doi.org/10.3389/fpsyt.2021.614102

Title: Autistic Adult Health and Professional Perceptions of It: Evidence From the ASDEU Project
Author: Micai, M; Ciaramella, A; Salvitti, T; Fulceri, F; Fatta, LM; Poustka, L; Diehm, R; Iskrov, G; Stefanov, R; Guillon, Q; Roge, B; Staines, A; Sweeney, MR; Boilson, AM; Leosdottir, T; Saemundsen, E; Moilanen, I; Ebeling, H; Yliherva, A; Gissler, M; Parviainen, T; Tani, P; Kawa, R; Vicente, A; Rasga, C; Budisteanu, M; Dale, I; Povey, C; Flores, N; Jenaro, C; Monroy, ML; Primo, PG; Charman, T; Cramer, S; Warberg, CK; Canal-Bedia, R; Posada, M; Scattoni, ML; Schendel, D
Contributor organization: Doctoral Programme in Clinical Research
HUS Psychiatry
Department of Psychiatry
Clinicum
Date: 2021-05-28
Language: eng
Number of pages: 18
Belongs to series: Frontiers in psychiatry
ISSN: 1664-0640
DOI: https://doi.org/10.3389/fpsyt.2021.614102
URI: http://hdl.handle.net/10138/335787
Abstract: The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated the knowledge and health service experiences of users and providers to generate new hypotheses and scientific investigations that would contribute to improvement in health care for autistic adults. An online survey designed for autistic adults, carers of autistic adults, and professionals in adult services was translated into 11 languages and distributed electronically by organizations and in-country adult service facilities in 2017; 522 autistic adults, 442 carers, and 113 professionals provided answers to the health questions. Professionals, the majority in non-medical services, appeared to be poorly informed about whether certain co-occurring conditions were more frequent in autistic adults than typical adults-especially some medical conditions, suicide attempts, accidents, and pain. A minority of autistic adults reported preventive health behaviors such as routine health check-ups. The majority of users and providers expressed the desire to make health care services more user-friendly for autistic adults. Among the three groups,
Subject: autism spectrum disorder
adults
health
co-occurring conditions
services
DISABILITIES MONITORING NETWORK
EMERGENCY-DEPARTMENT VISITS
AGED 8 YEARS
SPECTRUM DISORDER
PSYCHIATRIC COMORBIDITY
DEVELOPMENTAL-DISABILITIES
YOUNG-ADULTS
INTELLECTUAL DISABILITY
UNITED-STATES
US CHILDREN
3124 Neurology and psychiatry
Peer reviewed: Yes
Rights: cc_by
Usage restriction: openAccess
Self-archived version: publishedVersion


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