A novel digital patient-reported outcome platform (noona) for clinical use in patients with cancer : Pilot study assessing suitability

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Peltola , M K , Poikonen-Saksela , P , Mattson , J & Parkkari , T 2021 , ' A novel digital patient-reported outcome platform (noona) for clinical use in patients with cancer : Pilot study assessing suitability ' , JMIR Formative Research , vol. 5 , no. 5 , e16156 . https://doi.org/10.2196/16156

Title: A novel digital patient-reported outcome platform (noona) for clinical use in patients with cancer : Pilot study assessing suitability
Author: Peltola, Maria Kristiina; Poikonen-Saksela, Paula; Mattson, Johanna; Parkkari, Timo
Contributor organization: Department of Oncology
Helsinki University Hospital Area
HUS Comprehensive Cancer Center
Date: 2021-05
Language: eng
Number of pages: 8
Belongs to series: JMIR Formative Research
ISSN: 2561-326X
DOI: https://doi.org/10.2196/16156
URI: http://hdl.handle.net/10138/340747
Abstract: Background: As the incidence of cancer is on the rise, there is a need to develop modern communication tools between patients and the medical personnel. Electronic patient-reported outcome (ePRO) measures increase the safety of cancer treatments and may have an impact on treatment outcome as well. ePRO may also provide a cost-efficient way to organize follow-up for patients with cancer. Noona is an internet-based system for patients to self-report symptoms and adverse events of cancer treatments from home via a computer or a smart device (eg, smartphone, tablet). Objective: In this pilot study, we assessed the suitability of a novel ePRO application (Noona) for patients with cancer, nurses, and doctors at the Helsinki University Hospital, Finland. Methods: The study included 44 patients with cancer (different solid tumor types) and 17 health care professionals (nurses or medical doctors). Patients were either operated or received systemic treatment or radiotherapy. Patients reported their symptoms to the medical staff via Noona. In addition, patients and clinicians answered a questionnaire, based on which Noona's suitability for clinical use was evaluated in terms of usability (ease of use, operability, and learnability), reliability (subjective opinion of the participant), and incidence of harmful events reported by the participants. Results: A total of 41/44 (93%) patients and 15/17 (88%) professionals reported that the program was easy or quite easy to use; 38/44 (86%) patients and 11/17 (65%) professionals found Noona reliable, and 38/44 (86%) patients and 10/17 (59%) professionals would recommend Noona to other patients or their colleagues. No harmful incidences caused by the use of Noona were reported by the patients; however, 1 harmful incidence was reported by one of the professionals. Conclusions: The majority of the participants felt that Noona appeared reliable and it was easy to use. Noona seems to be a useful tool for monitoring patient's symptoms during cancer therapy. Future studies will determine the impact of this ePRO platform in routine clinical practice.
Description: Publisher Copyright: © 2021 JMIR Formative Research. All rights reserved.
Subject: Adverse events
Electronic patient-reported outcome
Patients with cancer
3122 Cancers
Peer reviewed: Yes
Rights: cc_by
Usage restriction: openAccess
Self-archived version: publishedVersion


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