TY  -  
T1  - Development of the SIOPE DIPG network, registry and imaging repository : a collaborative effort to optimize research into a rare and lethal disease 
SN  -  /  
UR  - http://hdl.handle.net/10138/195633 
T3  -  
A1  - van Zanten, Sophie E. M. Veldhuijzen; Baugh, Joshua; Chaney, Brooklyn; De Jongh, Dennis; Aliaga, Esther Sanchez; Barkhof, Frederik; Noltes, Johan; De Wolf, Ruben; Van Dijk, Jet; Cannarozzo, Antonio; Damen-Korbijn, Carin M.; Lieverst, Jan A.; Colditz, Niclas; Hoffmann, Marion; Warmuth-Metz, Monika; Bison, Brigitte; Jones, David T. W.; Sturm, Dominik; Gielen, Gerrit H.; Jones, Chris; Hulleman, Esther; Calmon, Raphael; Castel, David; Varlet, Pascale; Giraud, Geraldine; Slavc, Irene; Van Gool, Stefaan; Jacobs, Sandra; Jadrijevic-Cvrlje, Filip; Sumerauer, David; Nysom, Karsten; Pentikäinen, Virve; Kivivuori, Sanna-Maria; Leblond, Pierre; Entz-Werle, Natasha; von Bueren, Andre O.; Kattamis, Antonis; Hargrave, Darren R.; Hauser, Peter; Garami, Miklos; Thorarinsdottir, Halldora K.; Pears, Jane; Gandola, Lorenza; Rutkauskiene, Giedre; Janssens, Geert O.; Torsvik, Ingrid K.; Perek-Polnik, Marta; Gil-da-Costa, Maria J.; Zheludkova, Olga; Shats, Liudmila; SIOPE DIPG Network 
A2  -  
PB  -  
Y1  - 2017 
LA  - eng 
AB  - Diffuse intrinsic pontine glioma (DIPG) is a rare and deadly childhood malignancy. After 40 years of mostly single-center, often non-randomized trials with variable patient inclusions, there has been no improvement in survival. It is therefore time for international collaboration in DIPG research, to provide new hope for children, parents and medical professionals fighting DIPG. In a first step towards collaboration, in 2011, a network of biologists and clinicians working in the field of DIPG wa... 
VO  -  
IS  -  
SP  -  
OP  -  
KW  - Diffuse intrinsic pontine glioma (DIPG); Collaboration; International research-infrastructure; SIOPE DIPG network; SIOPE DIPG registry; INTRINSIC PONTINE GLIOMA; ACTIVATING ACVR1 MUTATIONS; DEFINE 2 SUBGROUPS; DIFFERENT PROGNOSIS; CLINICAL-TRIALS; HISTONE H3F3A; DIFFUSE; PHENOTYPES; CHILDREN; CANCER; 3122 Cancers; 3112 Neurosciences; 3124 Neurology and psychiatry 
N1  -   
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ER  -