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T1  - Marked deterioration in the quality of life of patients with idiopathic pulmonary fibrosis during the last two years of life 
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UR  - http://hdl.handle.net/10138/268055 
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A1  - Rajala, K.; Lehto, J. T.; Sutinen, E.; Kautiainen, H.; Myllärniemi, M.; Saarto, T. 
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Y1  - 2018 
LA  - eng 
AB  - BackgroundIdiopathic pulmonary fibrosis (IPF) is a chronic disease with a high symptom burden and poor survival that influences patients' health-related quality of life (HRQOL). We aimed to evaluate IPF patients' symptoms and HRQOL in a well-documented clinical cohort during their last two years of life.MethodsIn April 2015, we sent the Modified Medical Research Council Dyspnea Scale (MMRC), the modified Edmonton Symptom Assessment Scale (ESAS) and a self-rating HRQOL questionnaire (RAND-36) to ... 
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KW  - Idiopathic pulmonary fibrosis; Palliative care; Health related quality of life; Symptoms; RANDOMIZED CONTROLLED-TRIAL; LUNG-CANCER PATIENTS; INTEGRATED PALLIATIVE CARE; CLINICAL-PRACTICE; FUNCTIONAL STATUS; IPF REGISTRY; DISEASE; MANAGEMENT; DYSPNEA; COMORBIDITIES; 3121 General medicine, internal medicine and other clinical medicine 
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