TY  -  
T1  - Pooling and expanding registries of familial hypercholesterolaemia to assess gaps in care and improve disease management and outcomes : Rationale and design of the global EAS Familial Hypercholesterolaemia Studies Collaboration 
SN  -  /  
UR  - http://hdl.handle.net/10138/176777 
T3  -  
A1  - Vallejo-Vaz, Antonio J.; Akram, Asif; Seshasai, Sreenivasa Rao Kondapally; Cole, Della; Watts, Gerald F.; Hovingh, G. Kees; Kastelein, John J. P.; Mata, Pedro; Raal, Frederick J.; Santos, Raul D.; Soran, Handrean; Freiberger, Tomas; Abifadel, Marianne; Aguilar-Salinas, Carlos A.; Alnouri, Fahad; Alonso, Rodrigo; Al-Rasadi, Khalid; Banach, Maciej; Bogsrud, Martin P.; Bourbon, Mafalda; Bruckert, Eric; Car, Josip; Ceska, Richard; Corral, Pablo; Descamps, Olivier; Dieplinger, Hans; Do, Can T.; Durst, Ronen; Ezhov, Marat V.; Fras, Zlatko; Gaita, Dan; Gaspar, Isabel M.; Genest, Jaques; Harada-Shiba, Mariko; Jiang, Lixin; Kayikcioglu, Meral; Lam, Carolyn S. P.; Latkovskis, Gustavs; Laufs, Ulrich; Liberopoulos, Evangelos; Lin, Jie; Lin, Nan; Maher, Vincent; Majano, Nelson; Marais, A. David; Maerz, Winfried; Mirrakhimov, Erkin; Miserez, Andre R.; Mitchenko, Olena; Widen, Elisabeth; EAS Familial Hypercholesterolaemia 
A2  -  
PB  -  
Y1  - 2016 
LA  - eng 
AB  - Background: The potential for global collaborations to better inform public health policy regarding major non-hypercholesterolaemia (FH), a common genetic disorder associated with premature cardiovascular disease, is yet to be reliably ascertained using similar approaches. The European Atherosclerosis Society FH Studies Collaboration (EAS FHSC) is a new initiative of international stakeholders which will help establish a global FH registry to generate large-scale, robust data on the burden of FH... 
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KW  - Familial hypercholesterolaemia; LDL-Cholesterol; Cardiovascular disease; Registry; Study design; Familial Hypercholesterolaemia Studies Collaboration; EUROPEAN ATHEROSCLEROSIS SOCIETY; INDIVIDUAL PARTICIPANT DATA; CARDIOVASCULAR-DISEASE; GENERAL-POPULATION; CONSENSUS PANEL; PREVALENCE; PREDICTION; GUIDANCE; RISK; GUIDELINES; 3121 General medicine, internal medicine and other clinical medicine 
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