Alignments and differentiations : people with illness experiences seeking legitimate positions as health service developers and producers

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Jones , M & Pietilä , I V 2020 , ' Alignments and differentiations : people with illness experiences seeking legitimate positions as health service developers and producers ' , Health , vol. 24 , no. 3 , pp. 223-240 . https://doi.org/10.1177/1363459318800154

Title: Alignments and differentiations : people with illness experiences seeking legitimate positions as health service developers and producers
Author: Jones, Marjaana; Pietilä, Ilkka Veikko
Contributor: University of Helsinki, Helsinki Inequality Initiative (INEQ)
Date: 2020-05
Language: eng
Number of pages: 18
Belongs to series: Health
ISSN: 1363-4593
URI: http://hdl.handle.net/10138/314600
Abstract: Health policies and strategies promote the involvement of people with illness experiences in service development and production, integrating them into settings that have traditionally been domains of health professionals. In this study, we focus on the perspectives of people with personal illness experiences and explore how they justify involvement, position themselves as legitimate actors and forge collaborative relationships with health professionals. We have used discourse analysis in analysing individual interviews conducted with peer support workers and experts by experience (n = 17) who currently work in Finnish health services. The interviewees utilised discourses of empowerment, efficiency and patient-centeredness, aligning themselves with the justifications constructed by patient movements additionally to those found in current health policies. Both groups wanted to retain critical distance from professionals in order to voice criticisms of current care practices, yet they also frequently aligned themselves with professionals in order to gain legitimacy for their involvement. They adopted professional traits that moved them further from being lay participants sharing personal experiences and adopted an expert position. Although national-level policies provided backing and legitimacy for involvement, the lack of local-level guidance could hinder the practical implementation and make involvement largely dependent of professionals' discretion.
Subject: 3142 Public health care science, environmental and occupational health
expert by experience
Finland
health services
patient involvement
peer support worker
qualitative
PUBLIC INVOLVEMENT
PATIENT
CHALLENGES
CARE
OPPORTUNITIES
KNOWLEDGE
WORK
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